Diamond Blackfan Anaemia (DBA) is a blood condition caused by a failure within the bone marrow. It is characterized by an inability to produce red blood cells (necessary to transport oxygen around the body). It is typically diagnosed before the patients 2nd birthday with the majority of cases found before 4 months old. The condition is extremely rare, affecting approximately 125 people in the UK and only 600-700 world-wide.
About DBA-UK
DBA UK is the UK based parent support group for the condition Diamond Blackfan Anaemia (DBA), and a registered charity - No.1083179. With so few cases in the UK this rare condition leaves parents and patients feeling very isolated, as many of the Health Service staff they come into contact with will have never heard of the condition, let alone be aware of its treatment and prognosis.
The support group is made up of parents, family and friends of patients with DBA, along with the patients themselves. The charity aims to provide support for these families by bringing them together to provide mutual help. Sometimes just talking to someone who understands can be a relief in itself.
