Trustees
(trustees are elected to serve a 3 year period after which they must stand down but are eligible to stand for re-election)
John Carty - Secretary
re-elected at 2007 AGM
I am married to Debbie, with 2 children, Patrick, born in 1996 and Niamh, born in 1999. Patrick was diagnosed with DBA shortly after birth and has blood transfusions every four weeks. His iron chelation is managed by a combination of desferal and deferiprone. I joined the Committee of DBA UK as Secretary in March 2004. I live in Birmingham, and enjoy sport, music, books and an occasional pint of real ale.
Alan Dewick - Treasurer & Information Officer.
re-elected at 2009 AGM
I live in Ramsgate, Kent with my wife, Nikki. Operations Manager for small manufacturing company. Enjoy rugby, walking our 2 stupid dogs and card games.
Father to Marianne, Ami & Rebecca. Step-Father to Sherryanne, John-Marc & Katie-Jaine. Rebecca has DBA - Transfusion dependant with Exjade
Jayson Whitaker
re-elected at 2008 AGM
I have been involved in UK support group for DBA since 1999, helped to get DBAUK launched in its current format, one of the founder members.
My Son used to have DBA, we did not have remission we cured him with a stem cell transplant from a PGD/IVF matched sibling.
Elected Committee
(committee are elected annually at AGM)
Stuart Graham - Chairman
I live in London with my wife Natalie and our four children. Saskia, the eldest, was born in 2001 and diagnosed with DBA shortly after. She was only responsive to steroids on high doses so became transfusion dependent, taking Desferal five nights a week to reduce iron overload. In 2004 we undertook three rounds of IVF/PGD, the final one being successful (our third child, Imogen). Saskia had a successful bone marrow transplant in 2007.
June Kynoch - Fundraising Co-ordinator
I live in Chester le Street Co Durham with my husband Dave. I am a Business administration assessor for East Durham and Houghall College. My hobbies are Cross stitch, hand making greetings cards and the best of all is cycling. Organise the Coast to Coast bike ride to raise funds for DBA.
I am the Nanna to Charlie Whitaker who was diagnosed with DBA when he was 12 weeks old.
Nikki Dewick - Conference Co-ordinator
Sarah Allen - Newsletter Co-ordinator
Joe Fletcher - Nth Ireland Co-ordinator
Jennifer Corcoran - Sth Ireland Co-ordinator
I am Jennifer Corcoran married to Paul and mother to Drew 12, Evan 10 and Carlo 4. Carlo has DBA. He was diagnosed at 3.5 months with a hb of 3.4. He was transfusion dependant untill he was 22 months when we started him on steroids. He is still on them at 5mg alternate days. I will say the rest in my story....
Angela Cornwall - Public Relation Officer
Vilma Read
newsletters
