Vanessa Webb - Chair
Alan Dewick - Trustee (Treasurer) & Information Officer.
I live in Ramsgate, Kent with my wife, Nikki. Operations Manager for small manufacturing company. Enjoy rugby, walking our 2 stupid dogs and card games.
Father to Marianne, Ami & Rebecca. Step-Father to Sherryanne, John-Marc & Katie-Jaine. Rebecca has DBA - Transfusion dependant with Exjade
John Carty - Trustee (Secretary)
I am married to Debbie, with 2 children, Patrick, born in 1996 and Niamh, born in 1999. Patrick was diagnosed with DBA shortly after birth and has blood transfusions every four weeks. His iron chelation is managed by a combination of desferal and deferiprone. I joined the Committee of DBA UK as Secretary in March 2004. I live in Birmingham, and enjoy sport, music, books and an occasional pint of real ale.
Jayson Whitaker - Trustee (Deputy Chairman)
I have been involved in UK support group for DBA since 1999, helped to get DBAUK launched in its current format, one of the founder members.
My Son used to have DBA, we did not have remission we cured him with a stem cell transplant from a PGD/IVF matched sibling.
Eileen Rix
I Live in London with my husband Simon and two children. My eldest son has DBA and is currently on steroids. My special interest is research.
Andy Micklethwaite
I live in Burnley with my wife, Alison, and am a Director of a small medical device manufacturing company. We have three children - Abigail, Joel and Sophie.
Sophie was born prematurely and very small, and was diagnosed with dba at around 4 months old.
Jane McCarthy
I am married with two girls, Megan has dba she is transfused every 28 days and desferel. Chloe is fine.
I also have dba and I have been on steroids since I was 3, I am now 38! I enjoy crafts and watching telly, always tired so have to sit and watch tv (thats my excuse)
Alison Rowbotham
Nikki Dewick
Wife to Alan, details as above
Jim Atkinson
I live at Chester-le-Street, Co. Durham. Recently retired. Now working as a Patient Advisor Liaison officer mental health. I have a daughter now 25.
I have a nephew, Charlie who suffered from DBA.
June Kynoch
I live in Chester le Street Co Durham with my husband Dave. I am a Business administration assessor for East Durham and Houghall College. My hobbies are Cross stitch, hand making greetings cards and the best of all is cycling, have completed the Coast to Coast 5 times to raise funds for DBA.
I am the Nanna to Charlie Whitaker who was diagnosed with DBA when he was 12 weeks old.
