DBA-UK, the UK Diamond Blackfan Anaemia Support Group

10th ANNIVERSARY DBA Family Conference

Over 45 families attended the annual DBA-UK conference and AGM at Caythorpe Court, Lincolnshire. With fantastic weather the older children enjoyed the PGL activities (climbing, high-wires, quad-bikes, archery and so on) while a creche took care of the younger ones, allowing the families the opportunity to listen to a variety of speakers and to share experiences with each other.

Presentations were heard from

Dr Josu De La FuenteWhat is DBA
Katy ElwigHealthy Eating for DBA
Nicola HussainSteroids and Chelators

Panel sessions were held on Benefits, Needles / Pumps / Chelators and PGD/PTT (Preimplantation Genetic diagnosis / Preimplantation Tissue Typing). The medical professionals also ran 1 to 1 sessions and there was even an exercise class after the close on Saturday.

Families enjoyed a bar-b-q on the Saturday evening and as it was the 10th Anniversary Conference there was even a cake.

Sunday saw a futher presentation from Dr De La Fuente on Research and the Future followed by the Charity'a AGM, draft minutes are available here.

A talk on fundraising was then followed by an open forum for members.

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